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Comment by Zoe Buckley on May 10, 2012 at 15:02

@Brian, so, we've ruled out medicaments in your case, but what if your father's seizures were brought on by something he was taking at the time, also worth looking into, and would be a lot off the burden for oyu.

Comment by Zoe Buckley on May 10, 2012 at 15:01

Jo, I mentioned afterwards, I was being cynical, and simply saying that the playing field had to be level. I think that it would be an absurd idea, but I also think it would be just as absurd to give the vote to anyone from overseas who waltzes through customs.

I often have those moments at home where I wonder if something is really happening, or if it's "just me", and more often than not, OH and I will giggle at the fact that the house could go on fire, and I'd just make a cup of tea, and say "it's ok, it's just the FEAR." lol. Mind you, when my car went on fire, I seemed to handle it ok, was criticized for getting an extinguisher, to put it out, but that's what I learned, and the procedures I learned were what kicked themselves into practice, I just allowed my body to do those things. People afterwards said "Are you insane-going down there into the smoke with an extinguisher"'... insane, lol, yes.

Comment by Jo Blick on May 10, 2012 at 14:53

 Zoe, YES! to "does anyone else have that?? not being taken seriously because you're "unstable"? I'm also an ex RMN and am pleased to report that half of the training we had was aimed at getting us to be aware of the fact. Trouble was, the older, more senior staff without such a holistic background. They are a problem, but fortunately a dwindling one. Chin up about this issue, eh? ps, you surely cant really mean it about disabled people should not have the right to vote eh? can I not change your mind about that?

Comment by Brian Milne on May 10, 2012 at 8:45

Too right Zoe. Trouble is that both have happened in my sleep which, so far I have been advised, some triggers are off the list. I have one quite small cup of coffee a day and drink green and white teas with minimal caffeine, etc. At the end of the day, going back over life looking for the bleeders is hard work. I'll go with what you say, being loopy is fine, I've done over 40 years of that now so easy, but physical is scary. Then hearing about the old man!

We, that's to say OH who saw my second wobbler with me, spoke to my sister for a couple of hours last night. I'll have to tell the medics but from the sound of it the seizures my father had were in his last three months when he was sick anyway, clearly his heart dodgy because the PM showed he'd had a big heart attack some time or other before the one that finished him and also he was more or less drowing in the water accumulating in his lungs and so on - can't remember what the condition is called but I don't have a heart problem or that and the description of his fits and mine don't match. So perhaps coincidence, hope so, because hereditary means all the business of sis and me informing offspring. Not nice for them.

If your OH has them in sleep, as I have had, record it on your mobile or something. If I hadn't broken the shoulder I would have been none the wiser and last time if my daughters hadn't been neraby and wondered what was going on then I would have woken up none the wiser. Easy for me to see her position and yours now - but if it ever leads to damage like mine not worth it.

Yeah, I certainly came on here with this hoping somebody would say they have it, explain it and the fact that I am sometimes a bit luney not as always colour the views of medics.

Comment by Zoe Buckley on May 10, 2012 at 0:03

The MRIs might shed some light hopefully, but, in the meantime, can you think of any triggers, caffiene, MSG, tiredness, stress,an emotion of some sort that could trigger the storm?

hope you get it sorted soon, it's worrying, we can all live with being nutters, but physical problems are scary. i've only ever had one seizure in my life, and I put it down to sometihng in red bull. haven't touched the stuff since. 

then again, can we ever know, OH gets them in her sleep, and dismisses the fact as ME hallucinating when i tell her. it happens when she is overtired, but it's enough to wake me, and I am terrified of it. Then when I tell her, she says "well, you do dream when you're awake sometimes,you know".

does anyone else have that?? not being taken seriously because you're "unstable"? 

Comment by Ron Birks on May 9, 2012 at 15:12

Hi again, Jo. yes loving Inkscape, constantly evolving and Open Source, I like the ethos.

The BP group is great, everyone attentive and supportive and perhaps a place where you can get some common sense, unlike opening to yer mates down the pub.

The Art Department is a super group thanks to Neil's instigation, and we have sure got some talent here, and no one thinks less of us amatures.

Thank you for your last sweet comment, and be befriending moi!... we are stardust, as they say.

Comment by Jo Blick on May 9, 2012 at 15:03

Sounds very good advice to wait from the neurologist. Can't do any harm to eat healthily, keep fit and stay off any booze, fags or caffine whilst you wait. i don't want to take away any of life's little "pleasures" but it sounds as if you could do with starting from as clean a blackboard as possible before you start writing onto it with a new treatment plan. For anxiety I swear by no caffine and boring chamomile tea.  here's power to your elbow ...

Comment by Brian Milne on May 9, 2012 at 14:29

Yes Ron, but I was not taking anything and what I am supposed to take at present I have 'forgotten' since it is classified as a prohibited narcotic in a number of countries - my siren went straight off there. Also, another neurologist advised me wait until MRI scans and things are over before taking anything. Scheiße mit Reis!

Comment by Ron Birks on May 9, 2012 at 14:01

@ Brian, it is maybe a valid point that, the mood stabiliser I take ( Dapakote ) was first engineered as a Medication to counter Epilepsy, perhaps a correlation betwen Biplah and fitting, did a bit of acid in my youth too, but I never inhaled.

Comment by Jo Blick on May 9, 2012 at 13:51

Thanks for the tips Ron and for this forum. Fascinating. Of course I also love the Art Dept. You are clearly an SFN star! :)

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