Thats a tragic story about this poor wee fella, my heartfelt sympathy to him and his family, regardless of the huge controversy, which seems to me, ‘nuts’!
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Yes I sympathise with Alfie and his is family,but the behaviour of people outside the hospital is indefensible, they tried to storm the building the other day. There are lots more sick children and suffering families there and it is just making things worse for them, not to mention the intimidation of staff ,doctors etc
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Plus the Evans family appear to be being advised/manipulated by a bunch of ultra right wing Christian loonies from the US.
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if they had their wayu e would live on a ventilator the rest of his life. Sorry but while they still have their son what good is that for the little boy.
I have a DNR, do not ventilate for prolonged periods. Had it since I was 16 after coming out of hospital. While it saved my life as i was in intensive care and had they not ventilated me and induced a coma I would have died I have sicne seen many cases in all age ranges where people ventilate for all the wrong reasons. The worst that springs to mind is the family that forced the hospital to resuscitate a 97 year old woman over 10 times and her quality of life was zero she coud do nothing and used to be in her bed pleading with them to let her die. While Alfie is very young we have to look at quality of life for him and the fact he is terminally ill and if not for the medication would be suffering greatly. I know there are things the hospital is failing in but surely the parents when they see he is wet can help out instead of leaving him in the wetness.
life is not life like this…not for for Alfie.
But this is the hardest part of life…letting go when it is the time to do so.
So very tragic.
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When Dad was ‘on his way out’, He stopped breathing for too long at one point.
Doc told me there will be brain damage, but we can put Him on a ventilator.
I said to Him, “in view of the damage, could we not bother, let Him go?”.
I will always be gratefull to the Doctor, He didn’t and Dad slipped away instead of ‘gazing at a wall’ for possibly a long time.
Not an end for an old soldier 
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You need to know as much as you can about the pain and suffering the person is going through.
It is hard, more than hard but when a pet is so sick and can not eat and looks so so sad and full of pain…we let go because we love them.
We do this for them…not for us.
In a few countries life support is never turned off unless the next of kin request it.
Yes.
Do we put our beloved pets through life support knowing that their life is really over.
Just think about it? Is it loving someone by preserving them in such a state?
It’s an undoubtedly tragic situation…I think Tom and Kate would have been better advised to bring a lawsuit against the judges rather than the doctors at the hospital…I also think they should have been allowed to to take Alfie to Italy…he’s their little one and they should have been allowed that choice whatever the outcome at least then they would have known they had done everything possible to give their son a chance…I hope now they get to take their little one home…Yes some of us don’t allow our pets to suffer chronic disability and live by the adage “better a day too early than a day too late…” and love them enough to let them go…I have done this several times in the past for a pet…today I would probably seek referral to alternative vets first before making a final decision that can never be reversed…The decision for a child I can’t even begin to contemplate…most of us would leave no stone unturned for our pets…for a child most of us would go to the ends of earth leaving no pebble unturned…no grain of sand unturned…
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Yes Helen…
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have aread its pretty apparent everything has been done.
“bi-lateral symmetrical mid-brain lesions, central tegmental tracks within the brain
stem, global pallidus, thalami and striking symmetrical restricted diffusion in the
mesial temporal lobes, perirolandic cortices” The later imaging however showed
“diffuse white matter signal abnormality and swelling with swelling of the globus
pallidi, haemorrhagic infarction in the globus pallidus and splenium with thalamic
atrophy” The most recent scan seen by Professor Cross i.e. that of the 22 August
2017 she considered was highly indicative of a neurometabolic disorder, particularly
a mitochondrial disorder showing rapid progression. These complex interpretations
of the brain function were distilled into clear and inevitably distressing language.
The analysis led to a bleak conclusion”
un treatable all Italy would do is keep him drugged up and in bed. WHile they did turn off a ventilator for a few hours and he continued to breath they did not stop his medication which keeps the seizures at bay. he is dying. There is nothing that can be done about that beyond keeping him drugged up and ventilated.
While i would probably be in the same boat as the parents, there is a time to call enough.
oh yeah as you can see he has been seem by many many specialists
personally let them take him to Rome. it will free up the hospital from all these crazzies and give the parents the hope they so mch want that the pope and all mighty god can cure him in a miracle
There are times when we hope for a miracle but I am not sure that they can happen
We are all meant to live forever and love never dies or leaves us but it does.
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and what sort of sick supreme being allows a child to suffer like that in the first place.
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I read through that…thanks Harry…that was February and now it’s end of April…so you can see the reasons behind Kate and Tom’s various appeals as the situation has progressed month by month week by week and currently minute by minute…I did find Kate’s pictures of mould in her son’s iv tubes rather disturbing… x 
im not sure how that would happen, those things are changed all the time. I just see it as one they kept and let grow mould to add to it all. same for the wet bed up to his arm pits. hes wearing nappies and they suck up loads and even without 1 on 1 care surely the parents are helping change his nappies like parents would normally do.
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It can only be a “supreme being” that isn’t connected to source energy in the first place and a “supreme being” that various religions have hypothesised in order to control their adherents through fear…lesser gods…If it were me in Kate and Tom’s situation my appeal would not have been to the pope and the Vatican…nor to any purported religious leader of any organised religion…no offence intended but I’d be doing everything possible to get my child into the hands of an alternative medicine practitioner in whatever country necessary…I’ve been following a case of what can only amount to medical kidnap in Australia…their son was responding amazingly to an organic diet and cannabis oil…
Poor wee guy, his parents should have the choice, of where He should have, whatever treatment they choose, even if it’s alternative, personally, my faith would lie, in science, not Popes etc
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