Many thanks David, for your help and advice , I will look this up. Hopefully get it sorted at some point when we move out there! Thanks
Emma (John’s wife!) xx
Many thanks Paul, for your help and info. This is Emma John’s wife replying . I will look up the info you mentioned. It’s great people helping each other on this site.
Hope your wife is coping ok.
Thank u Emma xx
Hi Catherine , Many thanks for replying to John’s message, I will google AS and Survive France. This is Emma ,John’s wife who has AS. I hope your Dad is ok and managing to be happy and relatively pain free.
if you are going to live near Duras the nearest specialist rhumatology department would be at Libourne see
CHU Bordeaux also has dedicated rhumatology
My wife has suffered from chronic rheumatoid arthritis for many years - resulting in spinal difficulties amongst other things. She has been prescribed and used Embrel for long periods (though not currently). The cost of the drug(s) are very expensive.
Assuming you can obtain a Carte Vitale (see others for how one goes about arranging this), your wife's condition would most probably be considered Affection de Longue Duree (ALD) i.e.. A long term or major illness. She would then receive all treatment and drugs free of charge.
We live in Herault, Languedoc. Hopital Lapeyronie, in Montpellier, is perhaps the top Rheumatoid Hospital in the Country. The treatment my wife has received there over the last 14 years has been 1st Class.
My dad has this and I know there have been previous discussions about this on SFN. I also know the search facility on here is not great. I'd google AS and Survive France. If you can't find it let me know and I will try. I think the best specialists are going to be in Paris but I could be wrong? But your French GP will be able to refer you there and transport costs will possibly also be met.
Good luck to you and Emma!
ps from my experience of my dad's flare up's I would say being happy is key!