Levothyrox: The controversy over one of France's most commonly prescribed drugs

(Terry O'Rourke) #41

hello Mandy
went to doc… last week --told him that with the new formula( you recommended ) …my itching had reduced —but not stopped ! my breathlessness had continued and my neck pains were still there—He is sending me to heart specialist on/around 20th march --------love Terry.

(Mandy Davies) #42

Hi Terry

Always good to get these things checked out. Hope all will be well. Best of luck.

(Judy Kerns) #43

Hi Mandy,
Make a long story short: I trialled L-Henning from mid-Nov to mid-Jan. Not so great for me. Had serious stomach cramps regularly especially after mealtimes. Anxiety and restless sleep. Worst side-effects. Not tolerable.
So my Endocrinologist prescribed Euthyrox. Wasn’t easy to find here in Lyon. Managed to buy many boxes on trip to Zurich. So now I’ve been on it about 6 weeks. Some problems with stomach gas and restless sleep but better than on L-Henning. If doesn’t get better over time, Dr will prescribe liquid version of Levothyrox (normally for children). I seem to be really sensitive to excipients in these formulas.
Look forward to just being my normal self without side effects. Been long journey since last spring when new formula was released.
How are you doing Mandy?

(Mandy Davies) #44

Oh I’m sorry to hear this. How unpleasant for you. I’m fortunate to be doing really well now thank you. My only continuing symptom is a problem with my memory and I’m starting to think it’s not connected to my thyroid treatment. I hope you get back to normal really soon.

(Judy Kerns) #45

Hi Mandy, Glad to know you’re doing well. Memory loss can be a side effect of these meds too. But you may already be aware of it. Thanks for your well wishes. Take good care!

(anne kelly) #46

Hi i have been on levothyrox for 25 yrs and was very ill last year when they changed it
I now take " L-throxin Henning " feel very well and have no side effects. I have a blood test every 6 weeks and adjust the dose accordingly. It comes from Henning in Berlin. The pharmacie has to order it so i make sure i keep a good stock it comes 100 tablets in a box.

(Vanessa Caton) #47

I’d been following the problems in France as I have autoimmune hypothyroidism (Hashimotos). I had discovered my current treatment is not available in France. In fact it actually appears to be “illegal”. After not doing well on synthetic levothyoxine (basically may as well have taken sugar pills) I eventually after several years of researching & “working with” my GP, saw an endocrinologist who prescribed Armour Thyroid. It’s basically dried pig thyroid and provides ALL the thyroid hormones the body needs not just T4. I’ve been doing really well on it . As it is assimilated immediately by the body unlike the synthetic, I’m able (with the endocrinologist’s agreement ) to regulate how much I take so long as I don’t exceed the prescribed dose. I managed to get my U.K. GP to give me 4 months supply before we left but I’m dreading having to go back on synthetic levothyroxine. The pharmacist in the U.K. said if I can’t get Armour in France I might be able to get my GP in the U.K. to issue a private scrip for it !! Given I no longer live there that’s seems highly unlikely & would not practical (they’ll only issue 1 month’s prescription at a time) or economic as I know it costs £137 for 30 tablets so add on a private scrip and cost of getting it and it becomes unfeasable. We are in the very early stages of trying to find our way through the various bureaucracies but started by registering this morning with a doctor at a Centre Médicale today. He noted that I’d not done well on levothyroxine, confirmed Armour cannot be prescribed in France but noted that when I need a scrip that I should be prescribed …Euthyrox!! I will just have to hope the positive lifestyle of France counters the zombie like effects of being back on levothyroxine! As an aside husband mentioned at our joint appointment that he has bad hip & knee pain since just after we arrived - probably irritated what UK GP said years ago was arthritis (he’s only 50 & it first manifested itself in his 40s ) during our move as he helped lift our worldly goods onto & off the lorry then spent the next week or so unpacking & putting stuff up. The doc charged the €25 for the consult plus the scrip came to €29. The doc , a youthful (anyone looks young to me) and kindly chap would not accept our EHIC & said we’d have to claim the costs back using the feuille de soins once we’ve got a Carte Virale… deep breath!