Hello to you all
I don’t often participate in general discussions as sometime they get a little “hairy” - lol
However I do find many topics and discussions very interesting…
it’s great to see and read different opinions on different subjects.
For the very first time i wish to share my experiences here in France for my illness named myélome multiple. It’s in layman’s term … bone marrow cancer
The symptoms came very slowly, weight loss ( come on Iol i am a a woman lol. This was great ! Lol )
Then pains in my ribs… slowly pains in my sternum whereby it was a battle to do zips, buttons on trousers and omg to put on a bra a😊
I waited until the busy period of my work calmed down. Mipim market, miptv market, Film festival, lions festival, in Cannes , very important time in my job, eventually I visited my Gp, he actually knew that the symptoms were serious, he prescribed blood test, irm test, syntiographie test, more irm tests, 4 doctors questioned me about a car accident whereby I had had an airbag shock… as every bone I. Ribs, sternum and at the bottom of my spine were fractured…
I had never been in an accident in my life !!
My gp sent me to an oncologist in hôpital bonnet Frejus… doctor Guetneve ( bad spelling ) lol.
I had a file 10 cm thick with x rays, blood tests etc… he looked at ONE x Ray and immediately said Mme you have an illnesss myélome multiple. !! Okcome on how many of you have heard of that !l so… I asked is this a cancer, yes he replied le moelle osseux… so please doctor let’s say cancer not your term myélome quelques choses lol lol …
That was on a Monday. He left the room for 10 minutes-came back with a lovely smile and said hey it’s good you can start the chemotherapy on Monday next he was a happy man lol lol …
This was on the 22 August … I had chemo injections until November in 2016. Then I had chemo tablet until March whereby I had an autogreffe in March 2017. There I had big big chemo to kill all cells good and bad… painful. Hair loss. Pains all over the body … The autogreffe unfortunately did not work and the cancer cells went up… 4. Weeks in à stérilised bedroom in Nice. Terrible terrible side effects wow anything in to tummy just passed through…
Following this I had a tablet treatment and fortunately this worked… it lasted for around 4 months until my “pic” came down… I am now on a chemo tablet revlimed for the rest of my life! This week for the first time I am on remission, there are no cancer cells in my bones.
Now this is important for all who read this post to the end
I had no medical bills to pay, the security sociale paid 70% of my wage , my mutuelle paid the 30% of my wage. I had holiday rights during sick leave. I touched my 13th month during my illness. I was fully covered in every aspect during my illness.
The chemo has very badly effected my fingers and I have no nerves only pain severe pain in the fingers and toes…
I have contacted my mutuelle concerning une aide à domicile, my mutuelle can give me lol lol lol 20 hours … for the rest of my life lol lol ( not actually complaining they paid a years wages at 30%) however I am on my husbands mutuelle too…they wil pay an aide a domicile 2 hours every fortnight… as long as I send my prescriptions for the chemo regularly…
Both mutuelle s suggested that I can also contact my assurance habitation i am apparently I also covered for an aide de ménage on that policy also !
I finished work in the 11 November 2016 and returned to work on the 12 November 2017. At 50% therefore my company paid 50% and the sécurité sociale paid me 50%. In French temps therapeutic, after 6 months the sécurité sociale passed me onto the Mdph and now I am working 70% and the 30% is paid by the security sociale, it in another regime.
I have the rights to disabled parking, which I have refused to take as part of the treatment is to walk and exercise, far be it from me to take a place of someone more needy. …
The points that I wish to make are the following;
Pains, weakness, unexplained weight loss… see the doctor
Rights… learn and k ow your right, I was so naieve… so innocent
Be strong and do t let any illness overtake your life
Cancer is as much in the mind as in body
Positivity is the most important factor when fighting cancer
My illness is ongoing never cured, however I live very day as I did before I got Ill. No… alll that shit ooohhhh let’s go on a cruise, let’s go to these glorious places… no home, my children, my grandchildren, family friends and love ️
Let’s be grateful that we who live in France have a welfare, and medical situation second to none… we are so lucky to be able to have first class treatment and first class care following the illness whether large or small…
let’s be thankful and live our lives to the maximum and let France keep this marvelous system for alll of its habitants
Thank you France
Thank you to those who read this post
Hugs Anne Marie xxxxxxxx