This is my first posting. I did not know of this vibrant forum until this morning. I’ve spent the last few hours digesting such interesting experiences and advice regarding prostate cancer. Its the forum I’ve been looking for! I was confirmed as having pc about one year ago. I have been using the Prostate Cancer UK site for support - that organisation is brilliant with the trained specialist nurses who operate a helpline exceptional. I have however felt very frustrated and anxious living in France having this condition and being unable to access services that I believe exist.
My current struggle is deciding whether or not to have a second biopsy. My situation briefly is a PSA of 6.1 ( reduced from 9.3 1 year ago); Gleason 3+3 ( one lobe only) ; no issues on standard scan. I am in my mid sixties , blessed with a wonderful partner and felt very healthy until I received this news!
I am scheduled to have a second biopsy in one month . This would be without a second standard scan. I have read much about the development of parametric MRI ( rather than standard scan) that , in general terms, can detect( with results that are far better than a biopsy) if you have signs of Gleason 3+4 or greater. A positive mpMRI might mean for example a targeted biopsy, closer surveillance or maybe surgery. A negative mpMRI means that no or insufficient cancerous cells /signs were identified and probably no requirement for a biopsy.
I am really struggling to identify centres in France that offer mp MRI ( I think the french term would be IRM parametrique). Does anyone have any knowledge to share? My local doctor had not heard of this type of scan . My consultant felt only one facility was available in Paris - I feel he is not correct but don’t wish to challenge him…again!. In the UK 250 facilities are available under the NHS or privately. I have the option of going private at a cost of £750 -£1000. Obviously if the same facility is available free in France ( I live in Normandy) that would be my preference.
Thanks again for all your previous posts that I enjoyed reading so much this morning. There are dark moments when you are told you have pc especially in a foreign country when precision in communication regarding health is so critical. This forum is invaluable in encouraging men ( and their families) to take action, not feel isolated and to be informed.