OH was at Poitiers yesterday for biopsy results. Positive to prostate cancer ( sadly runs in the family ?
Anyway with asking /discussing results , future treatment i did not ask about Ald.
I see on the ordnances he has given it says Affection exonerante, and longee duree.
Do we need appointment with our medecin to get it registered ? I know the Urolgist has previously sent the dtr letters advising next steps/ results.
However even if he does this not sure dtr will register Ald unless we visit.
All new to me but i know a few members on here have Ald illnesses.
Thanks in advance
As long as someone registers it, it doesn’t matter. Just get his CV updated next time you go to the pharmacy.
Best of luck to your OH, there’s a few of us on here that have been in a similar situation.
Sorry to hear this. I now know more than I ever wanted to about prostate cancer in France so don’t hesitate if there’s anything I can do. I’m also being treated in Poitiers now, previously Paris.
My MT did my ALD application and I had to be there with my CV.
However, @Tranmere, just being diagnosed doesn’t 100% mean an ALD. A friend of ours who is has had prostate cancer has had his ALD removed after 10 year checks showing he is now clear. He is delighted!
As would I be. Personally, I’d be delighted to be told I was no longer entitled to ALD.
A propos of that, about a week after receiving my new attestation de droits on my message box, Ameli has finally been updated to my new address and I can see the new attestation online and confirmed that my ALD has continued without additional intervention.
All in all, despite my fretting, it’s all been very smooth taking about a month since the submission of my dossier and in good time to make sure that the next stage of treatment is covered. I was fretting even more that I’d need to pay for radiotherapy which wouldn’t have been trivial.
All I can say is that after my heart attack Longue Duree was mentioned somewhere and at the follow up to my doctor he only charged me €15 instead of €30. I then updated my card at the pharmacie. I haven’t had to pay anything for the 5 extra pills I take per day now.
Not yet. We were told that her application was on hold because our dossier was still with Yvelines despite me trying to change the address 3 times both online and by phone. Our details are now changed and they’ve recently requested 3 months of electricity bills to demonstrate residence so I’m mildly hopeful.
In a way i wish he was having treatment but specialist says at the moment not aggressive . So he prefers psa test 3 months , then another in three months and if no increase in Psa an mri and new biopsy next year.
He is seeing Dtr Bernardeau and i see he is the head urologist at CHU , so hopefully knows what he is doing.
Great news for him Jane. I really dont understand the system lol to be honest.
Anyway i do see it on the list of 30 ald. I see on OH email he has a notification from Ameli account so going to have a look.
Thanks everyone for replying. Sadly surprising how many are affected by this particular cancer.
A worry for me as OH’s father passed from it and earlier this year his brother. I literally had to nag the medecin to refer him as although PSA not sky high it had doubled in 6 months and with the family history.
Still at least now under care so all progressing .
